Back to nature

Since 2009, I have battled the rare brain disease, Intracranial Hypertension (IH, formally termed pseudotumor cerebri). My body thinks and acts like I have a brain tumor, but I do not. There is no known cause, just a sudden increase in intracranial pressure. Which in my case caused swelling of my optic nerve. I have had many shunt operations to reduce the pressure and save my sight.

Thankfully, in my case I went into remission and no longer needed a shunt. However, I was still experiencing chronic pain but no visual disturbances. My neurosurgeon installed a neuromodulator/neurostimulator and with the aid of Medtronic medical technology I have never been healthier.

Suffering from a debilitating illness, was unbearable. I have had 14 surgeries, (8 of which were brain surgery). I have endured a lot of pain and anguish. I have witnessed the various ways that my body can betray me, by filling my head with doubt and my body with pain.

My body, perhaps through years of misuse, developed a tumor that doesn’t truly exist (it’s weird, I know). I sometimes think that my body acted out, to get me to pay attention, be mindful, and show it respect.
In a way that only a dysfunctional brain can; a false tumor!

Medically, it may be a huge stretch to think about my health woes in that sense. However, as I mentioned no one knows what causes IH. I’m not so sure that others with the disease would agree with my findings… I’m writing from my personal experiences.

Suffice to say battling a disease not understood by logic caused me to counteract, logically. I started paying attention to my body and treating myself as if I were the most important person in my world. I eat healthily, I meditate, I run outside, I bike outside, I hike outside… nature has been my greatest recovery tool. To complete my healing process, I am immersing myself in nature, I am hiking the Pacific Crest Trail.

 

 

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Comments 5

  • Lynn Hall : Oct 28th

    I love your bio, cyborg. And I love that you’ll be doing this. I’ll be following!

    Reply
    • Crystal Gail Welcome : Oct 29th

      Awesomeness! And thanks 😉

      Reply
  • Carol Fullerton : Oct 28th

    You go Girl! Best of luck to you!

    Reply
    • Crystal Gail Welcome : Oct 29th

      Thank you, Carol!

      Reply
  • Hannah Marie : Dec 11th

    Yet another inspiring post. Keep up the great work, and I look forward to many more posts in the future.

    Reply

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